Talking to the press- Wed 19th Nov
“Have you been affected by cancer? Or perhaps one of your friends have or a family member has? Here at Macmillan, we are trying to raise awareness in the press of the issues young people who have experiences of cancer face. If possibly talking to a journalist about your personal experiences sounds of interest then please get in contact with Rachel in the press office at rgarnett@macmillan.org.uk. I look forward to hearing from you. Take Care. Rachel”
NOTE: If you are under 16 years old you have to have your parents permission to email rachel about this... You can also find out a bit more by leaving a note on my page: Thomas
Wednesday 12th November 2008
Hi, I'm Nicola one of the cancer nurses. I've recently taken over from Julie. Why not take a look at my profile and leave me a message. There should be some new info added to the site in the next few weeks so I'll keep you posted. Remember we're always happy to hear suggestions from you guys about what we should have on the site.
Take Care
Nicola
Wednesday 18th June
So what's new this month?
Have a look at our deal with it section. You'll find some new info about talking to friends and family. There's also some new info for friends and family to have a look at. I've also added another 3 chemo regimens to our understand it section. They are ABVD for Hodgkin's Lymphoma, and CHOP and R-CHOP for Non Hodgkin's Lymphoma.
Summer's here.
Exams are all over, holidays are coming up. Let us know what exciting things you've got planned for the summer.
Some of you might want to have some fun and help TIC at the same time. Check out our fundraising page for some ideas.
Wednesday 7th May
Hi everyone. It's Julie the TIC nurse here. I hope you're all enjoying some of this lovely weather we're getting.
So, what's been going on behind the scenes of TIC?
Well, I've added some new information in the chemotherapy section on the drugs bleomycin, cisplatin, doxorubicin and methotrexate. I've also updated the resources page. Check out the new information about holidays and 'special days' in the organisation section. There's still more new stuff to be added soon, so watch this space.....
Remember to keep any ideas for the site coming. We're always happy to hear your suggestions.
Monday 31st March
Congratulations to Becky on the birth of her beautiful baby girl. Bonnie Mae Kiddell was born on Monday 24th March. Mum and baby doing well.
So what else is new? Well I've been working on some new content. Hopefully some new chemo info will be added to the site over the next few weeks. A new section for friends and family will be added shortly too.
Remember to let either me or Thomas know if there's anything you'd like to see on the site to make it better.
Monday 11th February 2008
Hello! It's Becky, the TIC nurse here...
So what's new? Well, this week is my last week before i go on maternity leave... But don't worry we have someone to take over whilst i'm away! Her name is Julie Cain and she'll be working with thomas to make sure that more new info is put on the site over the coming year.
I wanted to thank you all for being so active on the site and making the forums so successful. You're the best!
New info on individual chemo drugs
I've added some new info in the chemotherapy section on the drugs Ifosfamide and Etoposide. Plus there will be more to add over the coming months. Watch this space...
Meanwhile thomas is busy working on the IT side of things to make TIC bigger and better...
I hope everything is going well for you guys and that you're managing to enjoy a bit of the sunshine we've been having. Remember if you have any ideas of information or stuff you want adding to TIC - just let us know. You can email thomas@cancerbackup.org or jcain@cancerbackup.org and we'll get on to it!
Bye for now and take good care of yourselves.
introducing Julie......
Hi folks,
I’m Julie, one of the cancer nurses. I will be taking over the TIC stuff from Becky.
I love watching chick flix, listening to loads of different music and rollerblading. Let’s hope I don’t have any mishaps with my blades while Becky’s off.
I’m really looking forward to getting involved. If there’s anything you think of that needs adding to the site just let me know. You can email me at julie@cancerbackup.org. Why not have a look at my profile and leave me a message.
Bye for now
Julie
So, TIC enters a brand new year, and we're hoping it's all going as well for you guys as it is for us. What exciting things are you going to get up to in 2008?
New ovarian cancer section
We've added some new information in the 'understand it' section. It's all about ovarian cancer.
- the ovaries
- types of ovarian cancer
- germ cell tumours
- causes
- symptoms
- diagnosis
- staging
- treatment
- fertility
A TIC Ambassador
We're soooo proud to present our first ever TIC Ambassador - Sarah_the_Star. Sarah has been really active on the site and is here to help anyone who might have a question.
If you would like to be a TIC Ambassador, let us know.
Wednesday 7th November 2007 - so what's new?
- You can now add video to your page by using your mobile phone. All you have to do is film something on your mobile and text it to us. It can then be uploaded to your TIC page. For more instructions see below...
- Have you got any great fundraising ideas for TIC? It can be anything from having a local cake sale to white water rafting down a turbulent river! To see more fundraising ideas or to get inspired have a look at the fundraising page
- Also thomas has fixed the map. Hooray! So add your location to it and see whereabouts your buddies are based.
Videos
NOW you can add videos to your profile directly from your mobile phone! Watch out though, sending an MMS (video SMS) can cost up to 50p. If your parents pay your phone bill, check it's ok with them.
- record a video clip less than 20 seconds long
- send it as an MMS to 82608399167@mms.youtube.com
- leave me a note on my page to tell me
- we'll upload it for you and let you know it's on your page
any probs, just let me know....here's one we made earlier:
The TIC map has been fixed!
Thomas has managed to fix the TIC map so that you can see other people...which is kind of the point. Have a look now, and you'll actually see some of your buddies.
Remember that if you are not signed in, you can't see anyone on the map.
Fundraising
Some of you guys like to get involved and help out TIC by doing something fun.
do you want to do a parachute jump?
do you want to sit in a bath full of baked beans?
then check out our fundraising page for some ideas
We're still busy! October 31st 2007
So we're still beavering away! This week you can see new info on tiredness. Thomas is tweaking things so that adding video and pics should be easier. I'm looking at the resources section and updating it and adding more stuff to it. So if you found any other organisations helpful - let us know.
tiredness
I've added a few new pages on tiredness to the deal with it section. Go have a read...and let me know what you think by adding a note to my page
adding video and pictures to your profiles
I know some of you have been trying to add video and pictures to your TICspaces. Sorry we've been a bit slow getting back. Here's a great example of just how good a video can be:
To add videos just send me a url (http://www.whatever.com/whatever) of the video you like from Youtube, Google Video or JimmyTeensTV.
To add pictures to your TICspace you have to upload your photos to a flickr.com account, and then send me the url. If you want though, you can send me the pictures to thomas@cancerbackup.org along with your username and I'll upload them to your page for you.
The full instructions can be found here
If you have any problems ask me on my profile page
We need your help
We are trying to build a better resources section, so that all of you can have great links to really helpful websites, organisations, books, holidays, blogs, nice wigs...anything that you find useful.
so send in your suggestions to becky@cancerbackup.org
There have been some pretty massive changes to the TIC site...I don't know where to start. New homepage, video on the site, adding buddies, leaving comments, adding video and images to profiles, a new forum layout, a TIC map and more...
video on the TIC site. like this one:
For the moment this will only be visible on a few pages...but it will be spreading throughout the site. What it does mean is you get to see what Becky and I look like...and we have to be on video...quite scary!
profiles have been made much better
Visit my page to see what they can look like.
Buddies - you can add your friends to your profile page so you can find them easily.
Notes - you can leave messages on your buddies' pages.
Videos - you can add a video to your page (you have to ask me for it and I'll stick it in for you)
Pictures - you can add a flickr slideshow to your page (again, you have to ask me first)
I hope you like the changes...let us know what you think on the forum...
the TIC map
You can now add yourself to the TIC map, see where other members are, and find friends who live either nearby or far away.
a new forum layout
We've tweaked the forum to make it easier for you to see what's been recently posted, and your posts should appear instantly now.
Becky has been working really hard, and has added some exciting new pages on stem cell transplants, in the treatments section of understand it. You'll find info on what happens when you get a transplant, how you will feel, and how to get back to normal afterwards.
This here is a picture of me up a mountain. I love mountains...the views really do inspire me and make me think the world's amazing. Remember...add your inspiring photos to the TIC gallery by emailing me your pics (thomas @ cancerbackup.org) and you can win tickets to the NME Freshers Tour.
Oh, and a quick update on our social networks. Add yourself if you haven't already, and keep encouraging your friends to do the same.
Facebook group: 20 members
Bebo profile: 8 friends
MySpace profile: 5 friends
lets keep them growing...
Hi guys,
this week we've joined MySpace and we have launched an exciting new inspirational photography competition.
We have a fantastic new competition for you...but you've got to be quick. We are giving away 2 tickets to each of 9 different NME Freshers Tour gigs around the country. The first gig is next week so you have to be quick. To win a prize, you have to take a picture of something that inspires you and send it in to thomas @ cancerbackup.org. We'll then pick the best pics and give away the tickets. You also have to let us know which gig you'd like to go to...have a look at the pictures already added to our inspirational gallery
Also, let us know which of the photos you like best...by chatting about it in the forums
Firstly an apology to everyone, because this week's blog is one day late. I know, I know, you've all been waiting eagerly for it, but there's a good reason why it's late...yesterday was thomas' birthday...so we were too busy celebrating to post the blog.
TIC joins facebook
Some of you out there have suggested to us that we should build a presence on some of the large social networks out there...like myspace and facebook and bebo.
So, we've started by joining Facebook. There is now a Teen Info on Cancer group that you can join, add your pics too, leave a message, find out about any TIC events, watch some TIC videos and all that sort of thing.
If you are a member of facebook do please join our group...and tell your friends about it too. The more people who join the more people we can help and the bigger the TIC community will get.
MySpace and Bebo profiles are coming soon...hopefully this week, so we'll let you know next week.
Also, check out this forum thread and tell us if there are any other sites you'd like us to be a part of.
TIC joins Bebo
So this morning it was Facebook, and now it's Bebo...soon it will be the worlddd!!!!
Some of you prefer Bebo to Facebook so now we are on Bebo too...get yourself on there, add us as a friend, write on our wall, tell your friends about us and all the rest of it.
