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AUTHOR TOPIC: CHEMO....

written by

Bradels (other:Steroid Resistance Minimal Change Disease, 22, M, South Africa)

posted Fri 29 May 2009 03:36PM
Chemo....



Hey guys.
My situation is a bit different, as I do not actually have cancer. I have a steroid resistant auto-immune disease where my own immune system attacks my organs, primarily kidneys, stomach and bones.

I have had to go on numerous courses of chemo therapy to try and "reset" my immune system, but it always comes back.

As you'd all know, chemo is not fun, and I have had about 5 regimes during my life (since I was 3)...

I just wanna know how you all deal with it? I was told yesterday that I need to go on another regime of chemo as my immune system is causing havoc again... I just really feel so down about it. I am 2nd year uni now and its very hard to keep up with friends when I have to go through chemo.

How do you guys deal with it? When I get given it over however many weeks I just kinda go into 'hibernation' until I grow more hair or until I feel better. How do you guys manage it all?